Three Challenges of being an NICU parent

During the month of November we are sharing stories of people who have had a neonatal experience via either a Neonatal Intensive Care Unit (NICU) or Special Care Baby Unit (SCBU).

We were contacted by a lovely woman Catherine and her and her husband Kris who thought it would be a good idea to talk openly about some of the challenges that parents face whilst in NICU.  Focusing on the fact that it’s important to be able to talk about these and normalise them given that having a baby in neonatal care is more common that people realise.  
They made this video about their three biggest challenges whist on their journey and have posted it on YouTube to encourage other parents to talk about their experiences and normalise the conversation of preterm birth and for some neonatal and infant loss.
Please watch and listen to an incredibly brave ex-NICU Mum outlaying her experience and thoughts.    
NOTE: this video contains sensitive topics regarding infant loss.

** Thanks for sharing this beautiful clip Catherine & Kris ***

We get a lot of positive feedback from families in a neonatal unit who read these stories and feel strength, hope and positivity knowing that they are not alone going through these experiences and feeling certain emotions.

If you would like to discuss sharing the story of your neonatal journey, we’d love to hear from you. Please email 

Interested in how The Little Miracles Trust supports families going through the stress and anxiety of a neonatal journey?  

Here’s a gallery of support examples




If you or someone you know has experiences infant loss and would like further information or support, please contact SANDS New Zealand – they are a voluntary, parent-run, non-profit organisation set up to support parents and families who have experienced baby loss at any stage, during pregnancy, as a baby or infant.

The Little Miracles Trust has a number of resources written by parents to help other parents through their neonatal journey.   These can help you bond with your baby, help with the stress of the journey, and support your partner:

You can find our other support PDF’s available for viewing here


Neonatal November

In 2017 we softly launched ‘Neonatal November’.  One of the key drivers for this was to have a wider period of time to raise awarness of neonatal journeys. 

In addition, we were conscious that there are many full-term neonatal journeys each year (ie the full-term babies with health issues and/or complications) and we wanted to widen beyond World Prematurity Day on November 17th.  All babies needing an extra hand are cared for by the caring, patient and kind staff in the Neonatal Intensive Care Units (NICUs) and Special Care Baby Units (SCBUs). 

See our website to find out what’s happening around the region this Neonatal November