
My baby has sadly died
The Little Miracles Trust is Aotearoa New Zealand’s national neonatal charity. We’re here to help
Losing your baby
Saying goodbye to your baby PDFWe know that within neonatal journeys some families suffer the loss of their little one and that it is important to recognise these families and their journey. There are no words for the magnitude of the grief and pain they will experience after this life changing event.
During such a traumatic time it can be difficult to know which way to turn and who can provide help in your moments of need. There are some links below and one Mum who has been through this has kindly curated the attached pdf to help others through this time.
The information within here is by no means a full and final document on coping with the loss of a baby so if you do have anything further which would help others please do email us on info@littlemiraclestrust.org.nz

The Purple Butterfly Initiative
You may see a small purple butterfly on an incubator, cot, or hospital room door. This simple symbol holds deep meaning. It gently signals that one or more babies from a multiple birth have sadly passed away, while a sibling or siblings have survived. It’s a respectful way to acknowledge a family’s grief while honouring the life of their surviving baby or babies.
The purple butterfly helps create space for compassion and understanding, without the family needing to explain their loss repeatedly.
Created by a bereaved mother, the Purple Butterfly Initiative and the work of the Skye High Foundation, is recognised worldwide as a symbol of both love and loss on the neonatal journey.