Neonatal Transitional Care Project mother/caregiver Survey

Across New Zealand, senior maternity and neonatal staff are working together on a model of care known as transitional care. An important feature of transitional care is that the mother (or carer) stays with the baby until they are well enough to be discharged. Care for babies with additional needs is currently usually provided in Neonatal Intensive Care or Special Care Baby Units, but some are cared for on the maternity ward.

The Neonatal Transitional Care Project Group are keen to hear from mothers whose babies needed more nursing and midwifery care than that required by a ‘well new-born’, especially those babies born from 35 weeks gestation.

You are invited to complete this survey if you:

· Recently gave birth to a baby that was 35 weeks gestation or more

and

· Your baby was either admitted to a Neonatal Intensive Care Unit or Special Care Baby Unit

· Your baby required additional care on a postnatal ward.

Examples of additional care could be:

· Extra feeding support (e.g. requiring a feeding tube for at least some of the feeds) Survey 1.jpg

· Antibiotics for more than two days

· Time under lights (phototherapy) for the treatment of jaundice (tested as being too yellow)

If you meet the above criteria, it would be appreciated if you could complete the online survey at https://www.surveymonkey.com/r/6LWHJ3T.

The Neonatal Transitional Care Project Group has a very tight timeline that means your feedback would be most appreciated before 27 November.

All feedback will be confidential; no individual mother, baby or location will be identified in any part of the collation of the feedback that will ultimately result in a report of the current situation.

As well as this survey, some Neonatal units are planning focus groups to enable discussion with neonatal or maternity staff.

Thank you for your time; your feedback is appreciated.

Thanks so much for sharing your personal story!

We get a lot of positive feedback from families in a neonatal unit who read these stories and feel strength, hope and positivity knowing that they are not alone going through these experiences and feeling certain emotions.

If you would like to discuss sharing the story of your neonatal journey, we’d love to hear from you.

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If you want to help our support of families going through the stress and anxiety of a neonatal journey, you can donate via the link below.

The Little Miracles Trust provides support to families of premature or sick full-term babies as they make their journey through Neonatal Intensive Care, the transition home, and onwards. We do not receive any Government funding and are entirely reliant on the generosity of individuals, companies and organisations in the form of donations, value-in-kind donations, grants, sponsorship and fundraising events to supplement operating costs and fund our services and initiatives.
As we are a registered charity (CC56619) with Charities Services New Zealand we will send you an IRD compliant tax receipt – this will happen automatically by return email.

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