Mum calls for support for tube-fed kids
Eli and Ben were born prematurely at 26 weeks’ gestation, then spent four months at Wellington Hospitals’ neonatal unit. They’re among 6000 babies born prematurely in New Zealand each year. Some leave hospital feeding normally. Others, such as Ben and Eli, go home with nasogastric tubes. The twins are two of an estimated hundreds of children nationwide who are dependent on the tubes for food or drink. Eli and Ben’s Mum, Dee, has helped to start Tube Wean NZ, which is petitioning the Government to fund a nationwide weaning programme.
Read more about Eli, Ben and Tube Wean NZ on the stuff website: http://goo.gl/D7ICHi
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We get a lot of positive feedback from families in a neonatal unit who read these stories and feel strength, hope and positivity knowing that they are not alone going through these experiences and feeling certain emotions.
If you would like to discuss sharing the story of your neonatal journey, we’d love to hear from you.
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If you want to help our support of families going through the stress and anxiety of a neonatal journey, you can donate via the link below.
- The Little Miracles Trust provides support to families of premature or sick full-term babies as they make their journey through Neonatal Intensive Care, the transition home, and onwards. We do not receive any Government funding and are entirely reliant on the generosity of individuals, companies and organisations in the form of donations, value-in-kind donations, grants, sponsorship and fundraising events to supplement operating costs and fund our services and initiatives.
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